Billy 2.0 – The Beginning of the End

Every cochlear implant blog I’ve read is the same. I thought I’d be the one to buck the trend.

Unfortunately, I’ve done exactly the same thing that everyone blogging about the journey to getting a bionic ear does – stop updating their blog at about six months after switch on.

I don’t know why, but everyone seems to stop writing at around that point. I always wondered why. Was it because they were too freaked by the new sounds to think straight? Or was it because they’d just run out of new things to say?

I haven’t run out of things to say – in fact I have a lot I want to say still… but what’s happened is that I woke up one morning, and the implant was just… normal. Ordinary, even. This is probably one of the last few blogs I’ll write, so I’ll just get it out there. Continue reading “Billy 2.0 – The Beginning of the End”

Billy 2.0 – A Trial Separation

This is one of the most difficult updates I’ve ever had to write. I’ve written and rewritten this, and there’s no easy way of putting it so I’m just going to say it.

When my implant was switched on last December, it was the end of a lifelong relationship.

For the last four months, I’ve been living without my long term companion.

It’s been difficult, but a lot of people agreed it was for the best that we underwent a trial separation. Continue reading “Billy 2.0 – A Trial Separation”

Billy 2.0 – Getting my new audiogram

Standard Audiogram

The above is an audiogram. Most deaf people have seen one of these before, but if you’re like me, you won’t have bothered to find out what they mean, other than ‘You are deaf. You are very, very, very deaf.’

From left to right, the audiogram is arranged like the keys on a piano, with low frequencies on the left and higher frequencies on the right.

From top to bottom is a measure of volume, in decibels.

Most people are born with perfect hearing. At the age of 18, your hearing is as good as it’s ever going to be. In fact, you’ll probably hear higher frequencies that people in their 30s and later in life can’t. As people age, they lose more and more hearing in the high frequency range.

Now, let’s look at the hearing that I was born with. My hearing has been more or less the same since I was born. I’m usually tested with a pair of headphones in a soundproofed room, using a cable with a button on the end which I press every time I hear a tone. Continue reading “Billy 2.0 – Getting my new audiogram”

Billy 2.0 – Why are some parents against cochlear implants for their children?

Cristina Hartmann
I’ve been trying for a long time to articulate my thoughts on this particular issue – in the end I found someone else had already answered the question with much more clarity and balance than I ever could. Her name is Cristina Hartmann, a writer based in the USA. Her thoughts are reprinted below from Quora with her kind permission.
I hope I’ll be able to offer a unique perspective that explains why the Deaf community resents CIs.
Let me establish my background and knowledge of Cochlear Implants (CIs) and the Deaf culture.I was born profoundly deaf in the early 1980s, so I learned American Sign Language (ASL) as my first language. Mind you, this is not as easy as it sounds. My family and I went to classes when I was 6 months old. I needed individual tutoring in the language daily because my family wasn’t fluent. Of course they weren’t fluent.
My family is like a large majority of deaf children’s parents: hearing. Continue reading “Billy 2.0 – Why are some parents against cochlear implants for their children?”

Billy 2.0 – Blogging on the BBC

Billy and Barnaby on the BBC

Sorry for the lack of updates recently – in the last month I’ve celebrated my birthday, Christmas and danced in an RAF Uniform on New Year’s Eve.

When fellow BBC employee Damon Rose asked me to join him in Broadcasting House for an interview for the Ouch! podcast, I couldn’t say no.

I also wrote a new piece for them about why I had the implant, and where I am with it now.

There will be a transcript of the radio interview on the page as well, I believe. That contains a rather unorthodox hearing test and some interesting chat about whether deaf children should have cochlear implants…

I hope you like it.

Further reading:
Switching on my Hearing – BBC Ouch!
Interview transcript

Billy 2.0 – The Enigma of Kaspar Hauser

KasparHauser

Kaspar Hauser was a mysterious teenage boy who appeared in the streets of Nuremberg in 1828, with limited vocabulary and understanding of the world. He claimed that he’d been imprisoned in a cellar most of his life with nothing but a wooden horse to play with. History has revealed he was probably a fantasist, but his mystery has never been solved.

I first learned of Hauser from watching Werner Herzog’s unsettling and affecting portrait of his short and troubled life starring an actor called Bruno S, who wasn’t the most ordinary person himself.

The first time I watched The Enigma of Kaspar Hauser, I was completely creeped out by Bruno S’ portrayal of a full-grown adult with the mind of a child, learning the names of things for the first time, trying to use a knife and fork, and reacting in a completely childlike, unaffected way to his surroundings.

I feel like Kaspar Hauser. Continue reading “Billy 2.0 – The Enigma of Kaspar Hauser”

Billy 2.0 – Coming up on an E

Human Traffic
I’ve been switched on for a couple of days now. After a great deal of reflection, I’ve realised that the only way to explain what I’ve been through is by using drug references.

So be warned: this article contains references to consumption of illegal drugs and their effects on the brain. It may also make much less sense than other stuff I’ve written in the past, for reasons which will hopefully become clear.

When I went into the audiologist’s office to be activated/switched on/turned on, I was expecting the unexpected. I knew it was going to be strange and uncanny. Even the audiologist told me that today would probably be the worst day of my life with a cochlear implant, and it would only get better from this point onwards. What happened next wasn’t really the worst thing ever, but it was deeply, deeply weird. Continue reading “Billy 2.0 – Coming up on an E”

Billy 2.0 – ACTIVATE!

Spit it like Beckham

A month since the operation, and I feel fine. There is however one unfortunate side effect which I need to share with you.

I can’t blow my nose properly.

If I sneeze with my mouth closed, or blow my nose REALLY REALLY HARD, I feel this sudden POP under the skin of my skull covering the implant, like a bit of air’s escaped and has momentarily inflated the skin like a comedy balloon.

It feels… unpleasant. Continue reading “Billy 2.0 – ACTIVATE!”